Recognizing and Testing for Autism in Adults: A Comprehensive Guide

Recognizing and Testing for Autism in Adults

Table of content

  • Introduction
  • Understanding Autism Spectrum Disorder
  • Recognizing the Signs of Autism in Adults
  • The Diagnostic Process
    • Initial Consultation
    • Diagnostic Assessment
    • Further Evaluation
    • Additional Testing
    • Feedback Session
  • Life After Diagnosis
  • More Reading
    • Books
    • Websites
    • Scientific and Medical Journals
    • Online Courses


It is a common misconception that only children can be diagnosed with autism spectrum disorder (ASD). However, many adults can go undiagnosed for most of their life, feeling ‘different’ without understanding why. Autism can manifest in various ways in adults and can be missed or wrongly diagnosed. This article aims to provide comprehensive information on how to test for autism in adults, its symptoms, the diagnostic process, and what to do after receiving a diagnosis.

Understanding Autism Spectrum Disorder

Autism Spectrum Disorder (ASD) is a neurodevelopmental condition that affects social interaction, communication, interests, and behavior. It is known as a ‘spectrum disorder’ because it affects each person differently and to varying degrees. While some may require significant daily support, others may lead independent lives but face unique challenges.

Recognizing the Signs of Autism in Adults

Identifying autism in adults isn’t always straightforward since symptoms can often overlap with those of other conditions like ADHD, OCD, or even social anxiety. However, common signs of autism in adults may include:

  • Difficulty with social interactions, such as understanding social cues or maintaining conversations.
  • Challenges with changes in routine or unexpected events.
  • Specialized or obsessive interests in specific topics.
  • Sensory sensitivities include discomfort with specific sounds, textures, or lights.
  • Repetitive behaviors, like hand-flapping or rocking.
  • Difficulty in understanding or expressing emotions.

Remember, these signs can vary from person to person. Just because someone shows some of these signs doesn’t necessarily mean they have ASD. A formal evaluation is necessary for a definitive diagnosis.

The Diagnostic Process

The way to determine if someone has Autism Spectrum Disorder (ASD) as an adult is by going through several steps. These steps are usually coordinated by a healthcare professional specializing in autism or behavioral disorders, like a psychiatrist or psychologist. Here is a general idea of what these steps involve:

  1. Initial Consultation: The first step towards diagnosis is an initial consultation where the healthcare provider will talk to the individual about their concerns, symptoms, and life experiences. They may also ask about developmental history and early childhood, as ASD symptoms typically appear in early childhood, even if they have been overlooked or misinterpreted. During this initial consultation, the healthcare provider must create a safe and comfortable environment for the individual. This allows for open and honest communication, crucial in understanding their concerns and symptoms. In addition to discussing present circumstances, the healthcare provider may also explore the individual’s past experiences, including any potential developmental challenges they may have faced during early childhood. The healthcare provider can better understand the individual’s unique situation by gathering this comprehensive information.
    Furthermore, the healthcare provider will carefully listen to the individual, focusing on their thoughts, emotions, and relevant life experiences. This comprehensive approach ensures that no aspect of the individual’s history or symptoms is overlooked, leading to a more accurate diagnosis. By conducting this thorough initial consultation allows the healthcare provider to gather the necessary information to diagnose
  2. Diagnostic Assessment: After the initial consultation, if the provider suspects ASD, they will conduct a more comprehensive assessment. This may include using diagnostic tools like the Autism Diagnostic Observation Schedule (ADOS), which assesses social interaction, communication, play, and imaginative use of materials for individuals suspected of having ASD.
  3. Further Evaluation: Following the initial consultation, in cases where Autism Spectrum Disorder (ASD) is suspected, the healthcare professional will proceed with a thorough evaluation. This evaluation typically involves employing specialized diagnostic instruments such as the Autism Diagnostic Observation Schedule (ADOS). The ADOS aims to assess and evaluate various aspects of an individual’s social interaction, communication skills, play abilities, and creativity in terms of materials used. The goal of such an assessment is to gather comprehensive information and gain a deeper understanding of the potential presence of ASD.
  4. Additional Testing: In some cases, the healthcare provider may suggest additional psychological testing or assessments to exclude other conditions that can imitate or co-occur with autism, like ADHD or anxiety disorders. This additional testing can assist in further understanding and diagnosing the individual’s situation and determining the most appropriate course of treatment and support. Recognizing and addressing comorbid conditions is crucial for providing comprehensive care to individuals with autism, as it allows for a holistic approach to their well-being. By thoroughly assessing and considering various factors, healthcare professionals can develop tailored strategies and interventions to address the individual’s unique needs and promote their overall development and functioning.
  5. Feedback Session: Once the assessments are complete, the provider will schedule a feedback session to discuss the findings and provide a diagnosis if applicable. During this session, the provider will thoroughly analyze the results of the assessments and provide constructive feedback. This feedback session aims to offer insight into the assessment outcomes and facilitate a comprehensive discussion surrounding the findings. If necessary, the provider will also provide a diagnosis during the feedback session, ensuring that all relevant information is shared and understood. The feedback session allows individuals to understand their assessment results better and explore potential ways to address any identified issues or areas for improvement. By doubling the size of the text, we can emphasize the significance of the feedback session in the overall assessment process and highlight its crucial role in developing a personalized plan going forward.

Life After Diagnosis

Receiving a diagnosis of autism as an adult can be a mix of feelings. On the one hand, it can help explain the struggles experienced throughout life. On the other hand, it can bring about a lot of emotions and questions about what to do next. After being diagnosed, the critical thing is to focus on getting to know oneself better and finding ways to navigate life with ASD. This may involve seeking therapy, joining support groups, or learning specific skills to manage the symptoms of autism. Self-advocacy is very important. People with ASD need to understand their rights and the support available in different areas of life, such as work and education. Testing for autism in adults is a careful and specialized process. If you or someone you know suspects that ASD may be present, it is a good idea to reach out to a healthcare provider specializing in autism. Remember, each person’s journey with autism is unique, and there is no right or wrong way to be autistic. The goal is understanding and embracing one’s neurodiversity to live a fulfilling life.

More reading

  1. Books:
    • “NeuroTribes: The Legacy of Autism and the Future of Neurodiversity” by Steve Silberman: This book explores the history of autism and the concept of neurodiversity.
    • “Adults on the Autism Spectrum Leave the Nest: Achieving Supported Independence” by Nancy Perry: A guide to help adults with autism and their families during the transition to independent living.
    • “Living Well on the Spectrum” by Valerie L. Gaus: This guide offers cognitive-behavioral strategies for adults with ASD to manage daily life.
  2. Websites:
    • Autism Speaks ( A leading autism advocacy organization with many resources about ASD.
    • National Autistic Society ( A UK-based organization with resources including information about adult diagnosis.
    • Autism Society ( A US-based organization with resources on various autism-related topics.
    • Autistic Self Advocacy Network ( An organization run by and for autistic people, offering resources and information on self-advocacy.
    • Spectrum News ( Provides comprehensive news and analysis of advances in autism research.
  3. Scientific and Medical Journals:
    • Journal of Autism and Developmental Disorders: A peer-reviewed medical journal publishing research on ASD.
    • Autism: The International Journal of Research and Practice: An interdisciplinary journal presenting research and commentaries on autism.
  4. Online Courses:
    • “Understanding Autism” by the University of Kent on FutureLearn: A free online course designed to understand more about autism, including diagnosis, the autistic spectrum, and life with autism.
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My name is Adi, and I am the proud parent of Saar, a lively 17-year-old who happens to have autism. I have created a blog,, with the aim to share our family's journey and offer guidance to those who may be going through similar experiences. Saar, much like any other teenager, has a passion for football, cycling, and music. He is also a budding pianist and enjoys painting. However, his world is somewhat distinct. Loud sounds can be overwhelming, sudden changes can be unsettling, and understanding emotions can be challenging. Nevertheless, Saar is constantly learning and growing, and his unwavering resilience is truly remarkable.

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