Hey friend! 👋 If you’ve been wondering whether your lifelong quirks and sensory sensitivities might be autism, you’re not alone. Adult autism diagnoses have been skyrocketing, so here’s your forward‑thinking, step‑by‑step guide to getting tested in 2025.
Many adults have gone their entire lives without recognizing their different way of experiencing the world. This experience might be attributed to autism spectrum disorder (ASD). Getting diagnosed as an adult can provide:
The journey to diagnosis can be emotionally complex. However, many adults report feeling an enormous sense of relief. They finally understand the neurological differences that have shaped their experiences.
Adult autism evaluations typically fall into three categories:
Finding the right professional is crucial for an accurate diagnosis. Here are your best options:
Often offer sliding‑scale fees and up‑to‑date diagnostic protocols. University-affiliated clinics frequently have specialized autism assessment teams. They may be conducting research that keeps them on the cutting edge of diagnostic approaches.
Search directories on Autism Speaks or NIMH. Look specifically for professionals who mention adult autism assessment in their specialties. Pediatric specialists may not be trained in identifying adult presentations.
Many have adult‑focused autism services; check your state’s health department website. These centers often have shorter waitlists than university clinics and may offer more affordable options.
| State | Center | Location & Link |
| California | UCLA Semel Institute | Los Angeles, CA — semel.ucla.edu |
| New York | NYU Langone Developmental Disabilities Center | New York, NY — nyulangone.org |
| Texas | UT Southwestern Autism Evaluation Services | Dallas, TX — utswmed.org |
| Florida | UF Fixel Institute Autism Program | Gainesville, FL — fixelinstitute.ufhealth.org |
| Illinois | Rush University Medical Center | Chicago, IL — rush.edu |
| Massachusetts | MGH Lurie Center for Autism | Boston, MA — massgeneral.org |
The telehealth landscape for autism assessment has expanded dramatically since 2020. Virtual options now include:
Several clinics now offer complete diagnostic evaluations through video platforms. These typically involve:
Notable providers include:
Some centers use a combined approach:
While not diagnostic, online screening tools can help determine if pursuing a formal evaluation makes sense:
Note: Always bring your screening results to professional consultations as a starting point for discussion.
Coverage for adult autism assessment has improved, but still varies widely:
Without insurance, expect these approximate ranges:
Most clinics will ask you to:
The process typically includes:
Q: Can I get diagnosed if I’m “high-functioning” or don’t match stereotypical autism presentations?
A: Yes. Modern diagnostic criteria recognize the broad spectrum of autism presentations. This includes those with strong verbal skills, masking behaviors, and less obvious traits. Specialists experienced with adult diagnosis are trained to identify these more subtle presentations.
Q: How long is the typical waitlist for an autism evaluation?
A: Waitlists vary widely by location and provider type. University centers often have 6-12 month waits, while private practitioners may have slots available within 1-3 months. Telehealth options have significantly reduced wait times for many.
Q: Is self-diagnosis valid in the autism community?
A: Formal diagnosis provides access to services and legal protections. Many in the autism community recognize self-diagnosis as valid. This is especially true given the barriers to formal assessment. Self-diagnosis after thorough research can be a legitimate starting point.
Q: Will a diagnosis affect my career or insurance?
A: Medical information is protected by HIPAA. Your diagnosis is confidential and disclosure is your choice. The Americans with Disabilities Act protects against workplace discrimination and entitles you to reasonable accommodations.
Q: I’ve masked my traits for decades. Will that prevent an accurate diagnosis?
A: Experienced clinicians understand masking (camouflaging autism traits) and will work with you to identify underlying patterns. Be honest about your masking strategies during assessment. Consider writing down examples of challenges you face when not masking.
Published April 20, 2025 by Dror Arbel at 101Autism.com
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