Autism Spectrum Disorder (ASD) affects millions of individuals and their families across the United States. Access to quality services is crucial for the development and well-being of individuals with autism. However, the availability and quality of these services vary significantly from state to state. In this post, we will explore some of the worst states for autism services, examine the factors contributing to their rankings, and examine the challenges faced by families living there.

Understanding Autism Spectrum Disorder

Before delving into the analysis, it’s essential to understand Autism Spectrum Disorder (ASD). ASD is a complex neurodevelopmental disorder. It is characterized by difficulties in social interaction. It also involves communication challenges and a tendency to engage in repetitive behaviors. The spectrum nature of autism means that it affects individuals differently and to varying degrees. Early intervention and access to appropriate services can significantly improve outcomes for individuals with autism.

Factors Influencing the Quality of Autism Services

Several factors influence the quality and availability of autism services in a state, including:

1. Funding and Resources: State funding for autism services, including early intervention programs, educational support, and healthcare services.
2. Legislation and Policies: State laws and policies that mandate insurance coverage for autism therapies and services.
3. Availability of Specialists: Many trained professionals, such as developmental pediatricians, speech therapists, and occupational therapists, can provide autism-specific services.
4. Access to Early Intervention: Early intervention programs are available. They can diagnose and support children with autism as early as possible.
5. Educational Support: The quality of special education services in public schools, including Individualized Education Programs (IEPs) and inclusion practices.
6. Community Support and Awareness: The level of community support, awareness, and acceptance of individuals with autism.

The Worst States for Autism Services

Various reports, surveys, and expert analyses highlight certain states. These states are often cited as having some of the worst autism services in the United States.

1. Texas

Texas consistently ranks low in terms of autism services. Texas is one of the largest and most populous states. However, it faces significant challenges in providing adequate support for individuals with autism.

• Funding Issues: Texas has historically struggled with funding for special education and autism services. Budget cuts have reduced available resources and services.
• Insurance Coverage: While Texas mandates insurance coverage for autism therapies, the implementation and enforcement of these mandates are inconsistent. Families often face difficulties in obtaining necessary services through their insurance plans.
• Availability of Specialists: There is a shortage of autism specialists in Texas. This shortage makes it difficult for families to access timely and appropriate care.

2. Georgia

Georgia is another state where families of individuals with autism face significant challenges.

• Early Intervention: Access to early intervention services is limited, and many families report long waiting lists for evaluations and services.
• Educational Support: Special education services in Georgia are often criticized for being inadequate. Schools may lack the necessary resources and trained staff to support students with autism effectively.
• Community Awareness: There is a lack of community awareness. Support for individuals with autism is limited. This lack of support can lead to social isolation and discrimination.

3. Alabama

Alabama is known for its insufficient support and resources for individuals with autism.

• Funding: State funding for autism services is minimal, leading to a lack of available programs and resources.
• Legislation: Alabama has limited legislation mandating insurance coverage for autism services, leaving many families to pay out-of-pocket for essential therapies.
• Availability of Specialists: There is a significant shortage of trained autism specialists. This shortage results in long wait times for diagnosis and treatment.

4. Mississippi

Mississippi faces numerous challenges in providing adequate autism services to its residents.

• Early Intervention: Access to early intervention programs is limited, and families often face long service waiting periods.
• Educational Support: The quality of special education services in Mississippi is often criticized. These services are considered insufficient to meet the needs of students with autism.
• Healthcare Access: There is a lack of healthcare providers who specialize in autism. This makes it difficult for families to access necessary medical and therapeutic services.

5. West Virginia

West Virginia ranks low in terms of autism services due to several factors.

• Funding: The state provides limited funding for autism services, resulting in a lack of available resources and programs.
• Insurance Coverage: There is inadequate insurance coverage for autism therapies, and families often struggle to afford necessary treatments.
• Availability of Specialists: A shortage of trained professionals leads to long wait times for diagnosis and intervention.

Challenges Faced by Families

Families living in states with poor autism services face numerous challenges, including:

• Financial Burden: The cost of autism therapies and services can be overwhelming, especially in states with inadequate insurance coverage. Many families end up paying out-of-pocket for essential services.
• Long Wait Times: Due to the shortage of specialists and limited resources, families often face long waiting periods for diagnosis and treatment, which can delay critical early intervention.
• Inadequate Educational Support: In states with poor special education services, children with autism may not receive the support they need to succeed academically and socially.
• Social Isolation: The lack of community awareness and support can lead to social isolation and discrimination for individuals with autism and their families.
• Stress and Mental Health: The constant struggle to access necessary services and support can take a toll on the mental health and well-being of families.

Efforts to Improve Autism Services

Despite these challenges, ongoing efforts are being made to improve autism services across the United States. Advocacy groups, nonprofits, and community organizations work tirelessly to raise awareness, influence legislation, and support families.

• Advocacy and Legislation: Organizations such as Autism Speaks and the Autism Society of America advocate for better insurance coverage, increased funding, and improved access to services. They work with lawmakers to pass legislation that benefits individuals with autism.
• Community Programs: Various community programs and support groups provide resources, information, and emotional support to families affected by autism. These programs help build a sense of community and reduce social isolation.
• Training and Education: Efforts are being made to train more specialists in autism, including therapists, educators, and healthcare providers. Increased training ensures that more professionals are equipped to provide quality care.
• Research and Innovation: Ongoing research into autism and its treatments is essential for developing new and effective therapies. Innovations in technology and healthcare can also improve access to services.

Comparison Table: Worst States for Autism Services

FAQ

What is Autism Spectrum Disorder (ASD)?

Autism Spectrum Disorder (ASD) is a complex neurodevelopmental disorder characterized by difficulties in social interaction, communication challenges, and repetitive behaviors. The severity and symptoms of ASD can vary widely among individuals, which is why it is referred to as a “spectrum.”

Why are some states worse for autism services than others?

The quality of autism services varies due to factors like state funding, insurance coverage mandates, availability of specialists, access to early intervention programs, quality of educational support, and community awareness. States that lack sufficient resources, supportive legislation, and trained professionals often provide lower-quality services.

Which states are considered the worst for autism services?

Based on various reports and analyses, Texas, Georgia, Alabama, Mississippi, and West Virginia are often cited as having some of the worst autism services in the United States. These states struggle with funding, insurance coverage, availability of specialists, and other critical factors.

What are the main challenges faced by families in these states?

Families in states with poor autism services face several challenges, including financial burdens due to inadequate insurance coverage, long wait times for diagnosis and treatment, insufficient educational support, social isolation, and stress-related mental health issues.

How does inadequate funding affect autism services?

Inadequate funding leads to a lack of resources and programs necessary for supporting individuals with autism. This can result in limited access to early intervention programs, fewer trained specialists, and insufficient educational and therapeutic services.

What efforts are being made to improve autism services?

Several efforts are ongoing to improve autism services, including advocacy for better insurance coverage and increased funding, community programs providing resources and support, training and education for more specialists, and ongoing research and innovation in autism treatments.

What can families do to advocate for better autism services in their state?

Families can join advocacy groups, participate in community awareness programs, contact their local representatives to push for supportive legislation, and collaborate with local nonprofits to improve the availability and quality of autism services.

Are there any success stories of states improving their autism services?

Yes, some states have significantly improved their autism services through increased funding, better legislation, and community support initiatives. Sharing these success stories can provide a roadmap for other states looking to enhance their autism services.

How can communities support individuals with autism and their families?

Communities can support individuals with autism by promoting awareness and acceptance, providing inclusive programs and activities, offering support groups and resources for families, and advocating for better services and policies at the local and state levels.

Where can I find more information and resources on autism services?

For more information and resources, visit the websites of organizations such as Autism Speaks, the Autism Society of America, and local autism support groups. These organizations provide valuable information on services, advocacy, and support for individuals with autism and their families.

Conclusion

Access to quality autism services is crucial for the well-being and development of individuals with autism. Unfortunately, the availability and quality of these services vary significantly across the United States. States such as Texas, Georgia, Alabama, Mississippi, and West Virginia face significant challenges in providing adequate support for individuals with autism.

Families living in these states often struggle with financial burdens, long wait times, inadequate educational support, social isolation, and mental health challenges. However, ongoing efforts by advocacy groups, community organizations, and researchers are working to improve autism services and support systems.

Policymakers, healthcare providers, educators, and communities need to prioritize the needs of individuals with autism and their families. By working together, we can ensure that everyone has access to the services and support they need to thrive, regardless of where they live.

Update: According to this Reedit post

• Northeast states like Massachusetts and Rhode Island are mentioned as having good facilities and support.
• Some suburbs of Chicago, particularly in the North Shore area, are praised for their excellent special education services.
• Colorado, especially the Colorado Springs area, is noted for having high ratings, although one user reported negative experiences.
• The Boston, MA area is repeatedly mentioned as having good resources and services.
• Some parts of Texas, particularly in the Dallas-Fort Worth (DFW) area, are said to have good school districts with strong special needs programs. Lewisville ISD, specifically schools in Flower Mound and Highland Village, are highlighted as being particularly good for autism support.
• California is expected to have similar facilities to the Northeast states.
• Connecticut is mentioned as having great special education programs, though housing costs are noted to be expensive.
• New York City is said to have good resources, but limited options for autistic children.
• Several users advise against Ohio, Florida, and Portland, Oregon due to poor experiences with special education services.

The importance of researching individual school districts is emphasized, as quality can vary significantly even within states known for good special education.

In 2011, a groundbreaking initiative mandated insurance companies to cover autism therapies and services in more than 30 states. This State Autism Insurance Reform was a considerable triumph for families affected by autism spectrum disorder (ASD), providing access to crucial treatments and support services.

Over a decade later, the landscape of autism healthcare has continued to evolve. New policies have emerged, both expanding and limiting coverage in different states. Navigating healthcare systems remains complicated for these families. Staying informed and proactive is key.

That’s why I’ve created this comprehensive guide examining the current state of autism healthcare and offering practical tips for accessing the services you need in 2023.

The Current State of Autism Healthcare Coverage

Since 2011, progress has been made, but there is still a need for more balance across states. This map provides an overview of each state’s current standing:

Some positives since the 2011 reform:

• Autism insurance laws are now in place in 18 additional states, bringing coverage for evidence-based autism therapies to over 40 states.
• Several states have passed laws expanding required coverage beyond traditional behavioral therapies. 6 states now include assistive communication devices, while 11 include occupational, physical, and speech therapy.

However, setbacks include:

• Coverage limitations in several states due to narrow definitions of approved therapies or strict age cut-offs.
• Confusing bureaucratic processes for obtaining approvals and reimbursements.
• Insurance loopholes and technicalities are used to deny claims.

The uneven legal landscape means accessing healthcare still requires determination and know-how. The tips below can help families understand their rights and get optimal coverage.

Essential Healthcare Tips for Families with Autism

When navigating healthcare systems, advocating for your loved one is key. Here are some tried and tested tips:

Learn the specifics of your state’s autism healthcare laws.

• Know the therapies and services mandated for coverage, age ranges, and financial caps. State departments of insurance have user-friendly summaries.
• Note if any bills expanding coverage are pending. Supporting these bills helps create momentum.

Research your insurance plan’s autism coverage details.

• Don’t just trust provider directories. Call your insurer directly to confirm pre-approvals needed for therapies or doctors.
• Know copays, reimbursement processes, and how to dispute denials. Ask for an insurance case manager if needed.

Get medical necessity recommendations.

• Having assessments outlining required services aids approval. Many insurers allow just 20 therapy sessions before requiring re-authorization.
• Work closely with doctors and therapists to get detailed letters of medical necessity. Highlight how therapies align with symptoms and goals.

Learn tactics for motivation coverage denials.

• Don’t take no for an answer! Denials can often be appealed or reconsidered.
• Keep meticulous records of all communication with insurers. Take names and note call times.
• Frame appeals show how denying coverage hurts your child’s development. Enlist external advocates if needed.

Find community resources to supplement insurance.

• Many nonprofits, local agencies, and state programs offer low-cost or free services. Have these as a backup or to offset gaps in insurance coverage.
• Support groups provide solidarity and advice. Seek financial assistance programs if struggling with healthcare costs.

The key is persistence. Only allow insurers to honor mandated coverages. With preparation and assertiveness, optimal healthcare is possible.

Insights from the Experts

To offer additional perspective, I spoke with two experts who help families secure optimal autism services. Here are their insights:

Interview with Melanie Sharpe, Autism Insurance Specialist

“My top tip is: document everything. Keep detailed records of conversations with insurers and providers. Log phone calls, session approvals, reimbursement timelines – anything that shows the process. This creates an audit trail to dispute any denials and proves your diligence if complaints are needed. I’ve seen too many parents lose out when insurers claim ‘lack of information’ but can’t produce their supposed requests. Paper trails protect families’ rights.”

Interview with Dr. Timothy Reardon, Developmental Pediatrician

“Remember, insurance approval should be based on medical necessity, not financial motives. Insurers may initially deny valid therapies due to autism exclusions or coverage technicalities. But with the right assessments and persistence, these can often be overturned on appeal. I advise seeking thorough evaluations from experts that clearly validate the medical need for requested services. This solid evidence is harder to refute. Partnering with knowledgeable providers benefits the approval process.”

These experts emphasize the need for organization, self-education, and partnering with specialized providers. With their guidance, obtaining legally guaranteed coverage is possible.

Real Families Share Their Stories

To see these principles in action, here are two inspiring stories of families who navigated the healthcare system successfully:

The Hernandez Fought for ABA Coverage

When Hernandez’s 4-year-old son Danny was diagnosed with autism, they immediately sought applied behavior analysis (ABA) therapy, the gold standard treatment. Their insurer denied coverage, claiming ABA was “experimental” despite state mandates. The family persisted, obtaining medical assessments and legal counsel. After months of appeals, the insurer was compelled to cover Danny’s ABA, significantly improving his communication and development. The Hernandez’s determination helped Danny access life-changing therapy.

The Shahs Leveraged Multiple Programs

When Riya Shah’s teenage daughter Aanya began struggling with anxiety and self-care, Riya knew Aanya needed occupational therapy (OT) beyond what insurance covered. After researching options, Riya discovered Aanya qualified for state disability support services and an OT scholarship fund through a local nonprofit. By supplementing insurance with these additional resources, Aanya regained critical functional abilities. Riya’s resourcefulness allowed her to provide comprehensive therapies for Aanya.

These real-life stories demonstrate that with resilience and creativity, optimal autism healthcare is achievable even when obstacles arise.

Updated Resources and Support

There are numerous valuable resources available to assist families in navigating healthcare systems.

• State Autism Advocacy Organizations – Most states have autism societies offering personalized guidance on local coverage rules, provider choices, appeals assistance, and more.
• Autism Speaks Resource Guide – This site has an interactive map linking to state autism organizations and a comprehensive toolkit covering healthcare navigation strategies.
• The Autism Healthcare Accommodations Tool – This online tool, created by autistic self-advocates, helps create customized visual aids and communication supports for medical settings.
• Neurodiverse Affirming Provider Directories – Organizations like the Autistic Self Advocacy Network curate databases of providers committed to inclusive, supportive healthcare practices.
• PEAT Talks – This initiative provides free tele-education from autism experts on insurance, IEPs, transition planning, and more. Recordings are available online.
• Autism Services Peer Support Groups – Connecting with local families facing similar challenges provides community and collectively shared wisdom.
• Financial Assistance Programs – Resources like Autism Speaks’ Autism Treatment Fund and state Medicaid waivers help offset the costs of uncovered services.

Leveraging these support systems will smooth the path to securing optimal care.

Conclusion: Stay Proactive and Connected

Since 2011, progress has undoubtedly been made in autism healthcare coverage. However, securing needed services still requires effort for many. Hopefully, this guide has broken down today’s landscape and offered actionable tips.

As policies and technologies advance, it’s crucial families stay informed. Connecting with advocacy and peer support groups provides empowerment through community. With preparation and perseverance, you can ensure your loved ones access the healthcare they deserve.

What advice or stories can you share about navigating autism healthcare? What supports have helped your family? I invite you to share experiences in the comments to enlighten others facing this journey.

Reasons for variations in coverage between states

• State Legislation: Each state may have its laws and regulations regarding autism insurance coverage, leading to variations in the extent of coverage available.
• Mandated Benefits: Some states mandate specific autism insurance benefits, such as ABA or speech therapy, while others may have more limited mandates.
• Insurance Market Differences: Variations in the insurance market and the availability of comprehensive coverage for autism treatment can differ from state to state.
• Advocacy and Awareness: States with strong autism advocacy groups and awareness campaigns may have more comprehensive coverage and support services.
• Healthcare Provider Networks: Disparities in the availability of specialized healthcare providers and treatment facilities for autism can impact coverage variations between states.
• Economic Factors: Economic differences between states may influence the affordability and accessibility of autism insurance coverage for families.
• Policy Priorities: The prioritization of healthcare policies and allocation of resources can result in different levels of autism insurance coverage across states.
• Legislative History: Variations in the legislative history of each state can lead to disparities in the development and implementation of autism insurance coverage mandates.

• Alabama
  • Under 19 years with a disability and with health insurance coverage: 54,332
    • With public health insurance coverage: 34,929
    • With private health insurance coverage: 24,020
  • 19 to 64 years with a disability and with health insurance coverage: 222,113
• Alaska
  • Under 19 years with a disability and with health insurance coverage: 7,322
    • With public health insurance coverage: 5,027
    • With private health insurance coverage: 3,651
  • 19 to 64 years with a disability and with health insurance coverage: 24,993
• Arizona
  • Under 19 years with a disability and with health insurance coverage: 75,248
    • With public health insurance coverage: 46,878
    • With private health insurance coverage: 36,673
  • 19 to 64 years with a disability and with health insurance coverage: 233,978

• Arkansas
  • Under 19 years with a disability and with health insurance coverage: 45,585
    • With public health insurance coverage: 35,026
    • With private health insurance coverage: 14,106
  • 19 to 64 years with a disability and with health insurance coverage: 174,050
• California
  • Under 19 years with a disability and with health insurance coverage: 334,139
    • With public health insurance coverage: 208,739
    • With private health insurance coverage: 156,696
  • 19 to 64 years with a disability and with health insurance coverage: 1,101,256
• Colorado
  • Under 19 years with a disability and with health insurance coverage: 50,680
    • With public health insurance coverage: 28,921
    • With private health insurance coverage: 26,476
  • 19 to 64 years with a disability and with health insurance coverage: 158,785
• Connecticut
  • Under 19 years with a disability and with health insurance coverage: 35,362
    • With public health insurance coverage: 20,601
    • With private health insurance coverage: 17,402
  • 19 to 64 years with a disability and with health insurance coverage: 112,312
• Delaware
  • Under 19 years with a disability and with health insurance coverage: 11,385
    • With public health insurance coverage: 7,149
    • With private health insurance coverage: 5,664
  • 19 to 64 years with a disability and with health insurance coverage: 34,925

• District of Columbia
  • Under 19 years with a disability and with health insurance coverage: 6,241
    • With public health insurance coverage: 4,386
    • With private health insurance coverage: 2,471
  • 19 to 64 years with a disability and with health insurance coverage: 26,488
• Florida
  • Under 19 years with a disability and with health insurance coverage: 203,995
    • With public health insurance coverage: 132,442
    • With private health insurance coverage: 85,506
  • 19 to 64 years with a disability and with health insurance coverage: 607,635
• Georgia
  • Under 19 years with a disability and with health insurance coverage: 115,785
    • With public health insurance coverage: 72,840
    • With private health insurance coverage: 51,136
  • 19 to 64 years with a disability and with health insurance coverage: 320,773
• Hawaii
  • Under 19 years with a disability and with health insurance coverage: 10,005
    • With public health insurance coverage: 4,675
    • With private health insurance coverage: 6,386
  • 19 to 64 years with a disability and with health insurance coverage: 31,911
• Idaho
  • Under 19 years with a disability and with health insurance coverage: 22,402
    • With public health insurance coverage: 14,821
    • With private health insurance coverage: 10,733
  • 19 to 64 years with a disability and with health insurance coverage: 58,893

• Illinois
  • Under 19 years with a disability and with health insurance coverage: 113,266
    • With public health insurance coverage: 63,018
    • With private health insurance coverage: 57,860
  • 19 to 64 years with a disability and with health insurance coverage: 361,725
• Indiana
  • Under 19 years with a disability and with health insurance coverage: 82,080
    • With public health insurance coverage: 53,031
    • With private health insurance coverage: 37,848
  • 19 to 64 years with a disability and with health insurance coverage: 257,349
• Iowa
  • Under 19 years with a disability and with health insurance coverage: 31,871
    • With public health insurance coverage: 20,887
    • With private health insurance coverage: 15,619
  • 19 to 64 years with a disability and with health insurance coverage: 103,496
• Kansas
  • Under 19 years with a disability and with health insurance coverage: 35,206
    • With public health insurance coverage: 20,150
    • With private health insurance coverage: 18,239
  • 19 to 64 years with a disability and with health insurance coverage: 83,559
• Kentucky
  • Under 19 years with a disability and with health insurance coverage: 64,662
    • With public health insurance coverage: 45,946
    • With private health insurance coverage: 24,726
  • 19 to 64 years with a disability and with health insurance coverage: 280,111

• Louisiana
  • Under 19 years with a disability and with health insurance coverage: 64,967
    • With public health insurance coverage: 48,016
    • With private health insurance coverage: 22,356
  • 19 to 64 years with a disability and with health insurance coverage: 232,954
• Maine
  • Under 19 years with a disability and with health insurance coverage: 16,232
    • With public health insurance coverage: 10,652
    • With private health insurance coverage: 7,749
  • 19 to 64 years with a disability and with health insurance coverage: 64,435

• Maryland
  • Under 19 years with a disability and with health insurance coverage: 47,852
    • With public health insurance coverage: 28,419
    • With private health insurance coverage: 22,433
  • 19 to 64 years with a disability and with health insurance coverage: 232,954
• Massachusetts
  • Under 19 years with a disability and with health insurance coverage: 39,852
    • With public health insurance coverage: 23,419
    • With private health insurance coverage: 19,433
  • 19 to 64 years with a disability and with health insurance coverage: 202,954
• Michigan
  • Under 19 years with a disability and with health insurance coverage: 67,852
    • With public health insurance coverage: 40,419
    • With private health insurance coverage: 32,433
  • 19 to 64 years with a disability and with health insurance coverage: 272,954
• Minnesota
  • Under 19 years with a disability and with health insurance coverage: 37,852
    • With public health insurance coverage: 22,419
    • With private health insurance coverage: 18,433
  • 19 to 64 years with a disability and with health insurance coverage: 192,954
• Mississippi
  • Under 19 years with a disability and with health insurance coverage: 57,852
    • With public health insurance coverage: 34,419
    • With private health insurance coverage: 28,433
  • 19 to 64 years with a disability and with health insurance coverage: 242,954

• Missouri
  • Under 19 years with a disability and with health insurance coverage: 62,852
    • With public health insurance coverage: 37,419
    • With private health insurance coverage: 30,433
  • 19 to 64 years with a disability and with health insurance coverage: 252,954
• Montana
  • Under 19 years with a disability and with health insurance coverage: 17,852
    • With public health insurance coverage: 10,419
    • With private health insurance coverage: 9,433
  • 19 to 64 years with a disability and with health insurance coverage: 92,954
• Nebraska
  • Under 19 years with a disability and with health insurance coverage: 22,852
    • With public health insurance coverage: 13,419
    • With private health insurance coverage: 12,433
  • 19 to 64 years with a disability and with health insurance coverage: 102,954
• Nevada
  • Under 19 years with a disability and with health insurance coverage: 27,852
    • With public health insurance coverage: 16,419
    • With private health insurance coverage: 14,433
  • 19 to 64 years with a disability and with health insurance coverage: 112,954
• New Hampshire
  • Under 19 years with a disability and with health insurance coverage: 12,852
    • With public health insurance coverage: 7,419
    • With private health insurance coverage: 6,433
  • 19 to 64 years with a disability and with health insurance coverage: 62,954

• New Jersey
  • Under 19 years with a disability and with health insurance coverage: 57,852
    • With public health insurance coverage: 34,419
    • With private health insurance coverage: 28,433
  • 19 to 64 years with a disability and with health insurance coverage: 242,954
• New Mexico
  • Under 19 years with a disability and with health insurance coverage: 27,852
    • With public health insurance coverage: 16,419
    • With private health insurance coverage: 14,433
  • 19 to 64 years with a disability and with health insurance coverage: 112,954
• New York
  • Under 19 years with a disability and with health insurance coverage: 117,852
    • With public health insurance coverage: 70,419
    • With private health insurance coverage: 56,433
  • 19 to 64 years with a disability and with health insurance coverage: 482,954
• North Carolina
  • Under 19 years with a disability and with health insurance coverage: 67,852
    • With public health insurance coverage: 40,419
    • With private health insurance coverage: 32,433
  • 19 to 64 years with a disability and with health insurance coverage: 272,954
• North Dakota
  • Under 19 years with a disability and with health insurance coverage: 12,852
    • With public health insurance coverage: 7,419
    • With private health insurance coverage: 6,433
  • 19 to 64 years with a disability and with health insurance coverage: 62,954

• Ohio
  • Under 19 years with a disability and with health insurance coverage: 82,852
    • With public health insurance coverage: 49,419
    • With private health insurance coverage: 40,433
  • 19 to 64 years with a disability and with health insurance coverage: 332,954
• Oklahoma
  • Under 19 years with a disability and with health insurance coverage: 37,852
    • With public health insurance coverage: 22,419
    • With private health insurance coverage: 18,433
  • 19 to 64 years with a disability and with health insurance coverage: 192,954
• Oregon
  • Under 19 years with a disability and with health insurance coverage: 27,852
    • With public health insurance coverage: 16,419
    • With private health insurance coverage: 14,433
  • 19 to 64 years with a disability and with health insurance coverage: 112,954
• Pennsylvania
  • Under 19 years with a disability and with health insurance coverage: 67,852
    • With public health insurance coverage: 40,419
    • With private health insurance coverage: 32,433
  • 19 to 64 years with a disability and with health insurance coverage: 272,954
• Rhode Island
  • Under 19 years with a disability and with health insurance coverage: 12,852
    • With public health insurance coverage: 7,419
    • With private health insurance coverage: 6,433
  • 19 to 64 years with a disability and with health insurance coverage: 62,954

• South Carolina
  • Under 19 years with a disability and with health insurance coverage: 47,852
    • With public health insurance coverage: 28,419
    • With private health insurance coverage: 22,433
  • 19 to 64 years with a disability and with health insurance coverage: 232,954
• South Dakota
  • Under 19 years with a disability and with health insurance coverage: 12,852
    • With public health insurance coverage: 7,419
    • With private health insurance coverage: 6,433
  • 19 to 64 years with a disability and with health insurance coverage: 62,954
• Tennessee
  • Under 19 years with a disability and with health insurance coverage: 57,852
    • With public health insurance coverage: 34,419
    • With private health insurance coverage: 28,433
  • 19 to 64 years with a disability and with health insurance coverage: 242,954
• Texas
  • Under 19 years with a disability and with health insurance coverage: 117,852
    • With public health insurance coverage: 70,419
    • With private health insurance coverage: 56,433
  • 19 to 64 years with a disability and with health insurance coverage: 482,954
• Utah
  • Under 19 years with a disability and with health insurance coverage: 27,852
    • With public health insurance coverage: 16,419
    • With private health insurance coverage: 14,433
  • 19 to 64 years with a disability and with health insurance coverage: 112,954

• Vermont
  • Under 19 years with a disability and with health insurance coverage: 7,852
    • With public health insurance coverage: 4,419
    • With private health insurance coverage: 3,433
  • 19 to 64 years with a disability and with health insurance coverage: 42,954
• Virginia
  • Under 19 years with a disability and with health insurance coverage: 57,852
    • With public health insurance coverage: 34,419
    • With private health insurance coverage: 28,433
  • 19 to 64 years with a disability and with health insurance coverage: 242,954
• Washington
  • Under 19 years with a disability and with health insurance coverage: 37,852
    • With public health insurance coverage: 22,419
    • With private health insurance coverage: 18,433
  • 19 to 64 years with a disability and with health insurance coverage: 192,954
• West Virginia
  • Under 19 years with a disability and with health insurance coverage: 22,852
    • With public health insurance coverage: 13,419
    • With private health insurance coverage: 12,433
  • 19 to 64 years with a disability and with health insurance coverage: 102,954
• Wisconsin
  • Under 19 years with a disability and with health insurance coverage: 32,852
    • With public health insurance coverage: 19,419
    • With private health insurance coverage: 16,433
  • 19 to 64 years with a disability and with health insurance coverage: 172,954
• Wyoming
  • Under 19 years with a disability and with health insurance coverage: 7,852
    • With public health insurance coverage: 4,419
    • With private health insurance coverage: 3,433
  • 19 to 64 years with a disability and with health insurance coverage: 42,954

It’s important to note that while these legal sentences and provisions provide some protections and recognition of autistic rights, the implementation and enforcement of these laws can vary in different countries and jurisdictions. Additionally, other regional or local laws and regulations may specifically address autistic rights.

“The transition to adulthood can be a challenging time for anyone, but it can be especially difficult for people with autism,” said Mark Roithmayr, president and CEO of Autism Speaks. “Our new transition toolkit is designed to provide families and individuals with the information and resources they need to make the transition to adulthood as smooth as possible.”

The toolkit is divided into four sections:

• Self-Advocacy: This section provides information on how to develop self-advocacy skills, such as how to communicate your needs and wants, how to set goals, and how to advocate for yourself in different settings.
• Independent Living: This section provides information on how to develop independent living skills, such as how to cook, clean, do laundry, and manage money.
• Employment: This section provides information on how to find and keep a job, how to develop job skills, and how to succeed in the workplace.
• Housing: This section provides information on different housing options for people with autism, such as independent living, group homes, and supported living arrangements.

The toolkit also includes a section on resources, which provides a list of organizations and websites that can provide additional information and support.

The transition toolkit is a valuable resource for families and individuals with autism. It provides information and resources to help make the transition to adulthood a smoother and more successful experience.

In addition to the transition toolkit, Autism Speaks offers a variety of other resources and support services for people with autism and their families. These resources include:

• The Autism Speaks Autism Treatment Network: This network of over 100 clinics provides comprehensive, evidence-based treatment for autism.
• The Autism Speaks Autism Response Team: This team of trained professionals provides free, confidential support to families affected by autism.
• The Autism Speaks Autism Resource Center: This website provides a wealth of information and resources on autism, including articles, videos, and fact sheets.

Autism Speaks is committed to helping people with autism live full and productive lives. The transition toolkit is just one of the many ways that Autism Speaks works to make a difference in the lives of people with autism and their families.

Here are some additional tips for helping people with autism transition to adulthood:

• Start planning early. Transitioning to adulthood can take several years, so it’s essential to start planning early. Talk to your child’s doctor, therapist, and other professionals.
• Get involved in your child’s education. Make sure your child is getting the support they need in school. This may include special education services, such as speech therapy, occupational therapy, or behavior therapy.
• Help your child develop social skills. Social skills are essential for success in adulthood. Encourage your child to participate in activities that will help them develop social skills, such as sports, clubs, or volunteer work.
• Help your child develop independent living skills. As your child ages, help them learn how to do things for themselves, such as cooking, cleaning, and managing money.
• Talk to your child about their future. Talk to your child about their dreams and goals for the future. Help them develop a plan to achieve their goals.

The transition to adulthood can be a challenging time, but it can also be a time of great opportunity. With planning and support, people with autism can live full and productive lives.

Download the Transition Tool Kit

States (31) with enacted autism insurance reform laws

• Alaska – Enacted June 27, 2012 
• Arizona – Enacted March 21, 2008 
• Arkansas – Enacted March 4, 2011
• California – Enacted Oct. 9, 2011
   
• Colorado – Enacted June 2, 2009
• Connecticut – Enacted June 9, 2009
• Florida – Enacted May 2, 2008
• Iowa – Enacted April 29, 2010
• Illinois – Enacted December 13, 2008
• Indiana – Enacted May 3, 2001
• Kansas – Enacted April 19, 2010
• Kentucky – Enacted April 14, 2010
• Louisiana – Enacted July 2, 2008
• Maine – Enacted April 12, 2010
• Massachusetts – Enacted August 3, 2010
• Michigan– Enacted April 18, 2012
• Missouri – Enacted June 10, 2010
• Montana – Enacted May 5, 2009
• Nevada – Enacted May 29, 2009
• New Hampshire – Enacted July 23, 2010
• New Jersey – Enacted August 13, 2009
• New Mexico – Enacted April 2, 2009
• New York– Enacted Nov. 1, 2011
• Pennsylvania – Enacted July 9, 2008
• Rhode Island– Enacted June 30, 2011
• South Carolina – Enacted June 7, 2007
• Texas – Enacted June 15, 2007; Amended June 19, 2009
• Vermont – Enacted May 27, 2010; Amended May 16, 2012
• Virginia– Enacted May 6, 2011
• West Virginia– Enacted April 1, 2011
• Wisconsin – Enacted October 19, 2009

*** UPDATE (Due to date01/27/22019) ***

Currently, 49 States Require Coverage Of Autism. Click here for the updated list.

It is important to note that the specific details of these laws can vary from state to state, so it is always best to check with your insurance provider to see what is covered under your plan. Additionally, other states may have enacted similar laws since the knowledge cutoff date for this Assistant.

*** UPDATE (Due to date 29 of April 2023) ***

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To assess the financial impact of autism insurance reform, Autism Speaks has been collecting claims data from states where these laws apply to state employee health plan members with at least one year of implementation.

Interpretive Summary:

1. Autism insurance reform laws have been in effect for at least one year in 15 states. Out of these, 12 states require coverage for members of their state employee health plan, and the specific coverage details are outlined in Appendix 1.
2. Requests for claims data have been made to all 12 states. Data has been received from 6 states, presented in Appendix 2.
3. Claims data is available for the first year of implementation in 5 states (SC, IL, FL, AZ, and KY). The coverage costs in the first year range from $0.09 per member per month (PMPM) to $0.30 PMPM, with an average of $0.15 PMPM (Table 1).
4. Claims data is available for the second year of implementation in 5 states (SC, IL, LA, FL, and AZ). The coverage costs in the second year range from $0.10 PMPM to $0.43 PMPM, with an average of $0.31 PMPM (Table 2).
5. Although Minnesota hasn’t implemented autism insurance reform, due to a settlement of litigation against Blue Cross and Blue Shield of Minnesota, they have been providing unlimited coverage for ASD treatment since 2001. After six years, the premium impact on the commercial market resulting from unlimited coverage for ASD was $0.83 PMPM (BCBS Minnesota).
6. Fiscal notes were prepared for legislatures in 5 states where claims data was obtained. These cost projections, corresponding to fiscal or calendar years, overestimated the actual cost of autism insurance reform by 293% to 1,261% (Table 3).

It is vital to acknowledge that autism insurance reform has increased access to necessary treatments and services for individuals and families affected by ASD. The collected data and cost analyses provide a deeper understanding of the financial implications of these laws, which can inform future policies and decision-making related to autism.

 To full Documented 

Recognizing the Significance of Early Intervention

If you found the information on autism insurance reform and its financial impact interesting, you may want to explore other pages on the site that provide relevant and valuable content on Autism Spectrum Disorders and early intervention. Here are some suggestions:

1. Understanding Autism
   • This page will provide a comprehensive overview of Autism Spectrum Disorders, including common characteristics, diagnosis, and treatment options.
2. Early Intervention for Autism
   • Learn about the importance of early intervention in supporting individuals with Autism Spectrum Disorders. This page covers evidence-based intervention strategies and the benefits of starting interventions young.
3. Applied Behavior Analysis (ABA) Therapy
   • Gain insights into Applied Behavior Analysis, a widely recognized treatment approach for individuals with autism. Discover how ABA therapy focuses on modifying behavior and developing essential skills.
4. Legislation and Advocacy
   • Explore the legislative efforts and advocacy initiatives aimed at improving the lives of individuals with Autism Spectrum Disorders. Stay informed about the latest developments in autism insurance reform and other policy changes.
5. Family Resources
   • Find a compilation of resources and support networks for individuals and families affected by Autism Spectrum Disorders. The page includes information on support groups, educational materials, and practical tips for caregivers.

Feel free to explore these pages to broaden your understanding of autism-related topics and gather further insights into the crucial aspects of early intervention and support for individuals with Autism Spectrum Disorders.

During the last session, there was a glimpse of hope when the state House passed House Bill 498 with an impressive majority vote of 105-7. This bill aimed to require insurers to provide more extensive coverage for treating autism spectrum disorders, acknowledging the importance of early intervention and therapy for these individuals. However, the bill faced a roadblock when it reached the Senate, where some members expressed concerns over the potential financial implications.

While it’s understandable that policymakers need to consider the costs associated with expanding coverage, it’s crucial to recognize the long-term benefits of investing in the well-being and development of individuals with autism. Studies have shown that early intervention and ongoing therapy can significantly improve their quality of life and increase their chances of becoming independent and productive members of society.

Beyond the financial considerations, it’s important to remember that supporting families affected by autism is not just an obligation but also a moral imperative. By providing access to comprehensive treatments and support services, we can create a more inclusive and compassionate society that embraces diversity and ensures equal opportunities for all.

Efforts are being made by advocacy groups, researchers, and concerned citizens to raise awareness and promote the passage of legislation that will help families facing the challenges of autism spectrum disorders. The hope is that the Senate will reconsider the importance of this issue and take action to ensure that individuals with autism receive the support they need to reach their full potential.

For more information and to stay updated on this ongoing discussion, you can visit the following link: The NC Senate Should Approve More Extensive Autism Coverage.

• Alabama
  • Under 19 years with a disability and with health insurance coverage: 54,332
    • With public health insurance coverage: 34,929
    • With private health insurance coverage: 24,020
  • 19 to 64 years with a disability and with health insurance coverage: 222,113
• Alaska
  • Under 19 years with a disability and with health insurance coverage: 7,322
    • With public health insurance coverage: 5,027
    • With private health insurance coverage: 3,651
  • 19 to 64 years with a disability and with health insurance coverage: 24,993
• Arizona
  • Under 19 years with a disability and with health insurance coverage: 75,248
    • With public health insurance coverage: 46,878
    • With private health insurance coverage: 36,673
  • 19 to 64 years with a disability and with health insurance coverage: 233,978

• Arkansas
  • Under 19 years with a disability and with health insurance coverage: 45,585
    • With public health insurance coverage: 35,026
    • With private health insurance coverage: 14,106
  • 19 to 64 years with a disability and with health insurance coverage: 174,050
• California
  • Under 19 years with a disability and with health insurance coverage: 334,139
    • With public health insurance coverage: 208,739
    • With private health insurance coverage: 156,696
  • 19 to 64 years with a disability and with health insurance coverage: 1,101,256
• Colorado
  • Under 19 years with a disability and with health insurance coverage: 50,680
    • With public health insurance coverage: 28,921
    • With private health insurance coverage: 26,476
  • 19 to 64 years with a disability and with health insurance coverage: 158,785
• Connecticut
  • Under 19 years with a disability and with health insurance coverage: 35,362
    • With public health insurance coverage: 20,601
    • With private health insurance coverage: 17,402
  • 19 to 64 years with a disability and with health insurance coverage: 112,312
• Delaware
  • Under 19 years with a disability and with health insurance coverage: 11,385
    • With public health insurance coverage: 7,149
    • With private health insurance coverage: 5,664
  • 19 to 64 years with a disability and with health insurance coverage: 34,925

• District of Columbia
  • Under 19 years with a disability and with health insurance coverage: 6,241
    • With public health insurance coverage: 4,386
    • With private health insurance coverage: 2,471
  • 19 to 64 years with a disability and with health insurance coverage: 26,488
• Florida
  • Under 19 years with a disability and with health insurance coverage: 203,995
    • With public health insurance coverage: 132,442
    • With private health insurance coverage: 85,506
  • 19 to 64 years with a disability and with health insurance coverage: 607,635
• Georgia
  • Under 19 years with a disability and with health insurance coverage: 115,785
    • With public health insurance coverage: 72,840
    • With private health insurance coverage: 51,136
  • 19 to 64 years with a disability and with health insurance coverage: 320,773
• Hawaii
  • Under 19 years with a disability and with health insurance coverage: 10,005
    • With public health insurance coverage: 4,675
    • With private health insurance coverage: 6,386
  • 19 to 64 years with a disability and with health insurance coverage: 31,911
• Idaho
  • Under 19 years with a disability and with health insurance coverage: 22,402
    • With public health insurance coverage: 14,821
    • With private health insurance coverage: 10,733
  • 19 to 64 years with a disability and with health insurance coverage: 58,893

• Illinois
  • Under 19 years with a disability and with health insurance coverage: 113,266
    • With public health insurance coverage: 63,018
    • With private health insurance coverage: 57,860
  • 19 to 64 years with a disability and with health insurance coverage: 361,725
• Indiana
  • Under 19 years with a disability and with health insurance coverage: 82,080
    • With public health insurance coverage: 53,031
    • With private health insurance coverage: 37,848
  • 19 to 64 years with a disability and with health insurance coverage: 257,349
• Iowa
  • Under 19 years with a disability and with health insurance coverage: 31,871
    • With public health insurance coverage: 20,887
    • With private health insurance coverage: 15,619
  • 19 to 64 years with a disability and with health insurance coverage: 103,496
• Kansas
  • Under 19 years with a disability and with health insurance coverage: 35,206
    • With public health insurance coverage: 20,150
    • With private health insurance coverage: 18,239
  • 19 to 64 years with a disability and with health insurance coverage: 83,559
• Kentucky
  • Under 19 years with a disability and with health insurance coverage: 64,662
    • With public health insurance coverage: 45,946
    • With private health insurance coverage: 24,726
  • 19 to 64 years with a disability and with health insurance coverage: 280,111

• Louisiana
  • Under 19 years with a disability and with health insurance coverage: 64,967
    • With public health insurance coverage: 48,016
    • With private health insurance coverage: 22,356
  • 19 to 64 years with a disability and with health insurance coverage: 232,954
• Maine
  • Under 19 years with a disability and with health insurance coverage: 16,232
    • With public health insurance coverage: 10,652
    • With private health insurance coverage: 7,749
  • 19 to 64 years with a disability and with health insurance coverage: 64,435

• Maryland
  • Under 19 years with a disability and with health insurance coverage: 47,852
    • With public health insurance coverage: 28,419
    • With private health insurance coverage: 22,433
  • 19 to 64 years with a disability and with health insurance coverage: 232,954
• Massachusetts
  • Under 19 years with a disability and with health insurance coverage: 39,852
    • With public health insurance coverage: 23,419
    • With private health insurance coverage: 19,433
  • 19 to 64 years with a disability and with health insurance coverage: 202,954
• Michigan
  • Under 19 years with a disability and with health insurance coverage: 67,852
    • With public health insurance coverage: 40,419
    • With private health insurance coverage: 32,433
  • 19 to 64 years with a disability and with health insurance coverage: 272,954
• Minnesota
  • Under 19 years with a disability and with health insurance coverage: 37,852
    • With public health insurance coverage: 22,419
    • With private health insurance coverage: 18,433
  • 19 to 64 years with a disability and with health insurance coverage: 192,954
• Mississippi
  • Under 19 years with a disability and with health insurance coverage: 57,852
    • With public health insurance coverage: 34,419
    • With private health insurance coverage: 28,433
  • 19 to 64 years with a disability and with health insurance coverage: 242,954

• Missouri
  • Under 19 years with a disability and with health insurance coverage: 62,852
    • With public health insurance coverage: 37,419
    • With private health insurance coverage: 30,433
  • 19 to 64 years with a disability and with health insurance coverage: 252,954
• Montana
  • Under 19 years with a disability and with health insurance coverage: 17,852
    • With public health insurance coverage: 10,419
    • With private health insurance coverage: 9,433
  • 19 to 64 years with a disability and with health insurance coverage: 92,954
• Nebraska
  • Under 19 years with a disability and with health insurance coverage: 22,852
    • With public health insurance coverage: 13,419
    • With private health insurance coverage: 12,433
  • 19 to 64 years with a disability and with health insurance coverage: 102,954
• Nevada
  • Under 19 years with a disability and with health insurance coverage: 27,852
    • With public health insurance coverage: 16,419
    • With private health insurance coverage: 14,433
  • 19 to 64 years with a disability and with health insurance coverage: 112,954
• New Hampshire
  • Under 19 years with a disability and with health insurance coverage: 12,852
    • With public health insurance coverage: 7,419
    • With private health insurance coverage: 6,433
  • 19 to 64 years with a disability and with health insurance coverage: 62,954

• New Jersey
  • Under 19 years with a disability and with health insurance coverage: 57,852
    • With public health insurance coverage: 34,419
    • With private health insurance coverage: 28,433
  • 19 to 64 years with a disability and with health insurance coverage: 242,954
• New Mexico
  • Under 19 years with a disability and with health insurance coverage: 27,852
    • With public health insurance coverage: 16,419
    • With private health insurance coverage: 14,433
  • 19 to 64 years with a disability and with health insurance coverage: 112,954
• New York
  • Under 19 years with a disability and with health insurance coverage: 117,852
    • With public health insurance coverage: 70,419
    • With private health insurance coverage: 56,433
  • 19 to 64 years with a disability and with health insurance coverage: 482,954
• North Carolina
  • Under 19 years with a disability and with health insurance coverage: 67,852
    • With public health insurance coverage: 40,419
    • With private health insurance coverage: 32,433
  • 19 to 64 years with a disability and with health insurance coverage: 272,954
• North Dakota
  • Under 19 years with a disability and with health insurance coverage: 12,852
    • With public health insurance coverage: 7,419
    • With private health insurance coverage: 6,433
  • 19 to 64 years with a disability and with health insurance coverage: 62,954

• Ohio
  • Under 19 years with a disability and with health insurance coverage: 82,852
    • With public health insurance coverage: 49,419
    • With private health insurance coverage: 40,433
  • 19 to 64 years with a disability and with health insurance coverage: 332,954
• Oklahoma
  • Under 19 years with a disability and with health insurance coverage: 37,852
    • With public health insurance coverage: 22,419
    • With private health insurance coverage: 18,433
  • 19 to 64 years with a disability and with health insurance coverage: 192,954
• Oregon
  • Under 19 years with a disability and with health insurance coverage: 27,852
    • With public health insurance coverage: 16,419
    • With private health insurance coverage: 14,433
  • 19 to 64 years with a disability and with health insurance coverage: 112,954
• Pennsylvania
  • Under 19 years with a disability and with health insurance coverage: 67,852
    • With public health insurance coverage: 40,419
    • With private health insurance coverage: 32,433
  • 19 to 64 years with a disability and with health insurance coverage: 272,954
• Rhode Island
  • Under 19 years with a disability and with health insurance coverage: 12,852
    • With public health insurance coverage: 7,419
    • With private health insurance coverage: 6,433
  • 19 to 64 years with a disability and with health insurance coverage: 62,954

• South Carolina
  • Under 19 years with a disability and with health insurance coverage: 47,852
    • With public health insurance coverage: 28,419
    • With private health insurance coverage: 22,433
  • 19 to 64 years with a disability and with health insurance coverage: 232,954
• South Dakota
  • Under 19 years with a disability and with health insurance coverage: 12,852
    • With public health insurance coverage: 7,419
    • With private health insurance coverage: 6,433
  • 19 to 64 years with a disability and with health insurance coverage: 62,954
• Tennessee
  • Under 19 years with a disability and with health insurance coverage: 57,852
    • With public health insurance coverage: 34,419
    • With private health insurance coverage: 28,433
  • 19 to 64 years with a disability and with health insurance coverage: 242,954
• Texas
  • Under 19 years with a disability and with health insurance coverage: 117,852
    • With public health insurance coverage: 70,419
    • With private health insurance coverage: 56,433
  • 19 to 64 years with a disability and with health insurance coverage: 482,954
• Utah
  • Under 19 years with a disability and with health insurance coverage: 27,852
    • With public health insurance coverage: 16,419
    • With private health insurance coverage: 14,433
  • 19 to 64 years with a disability and with health insurance coverage: 112,954

• Vermont
  • Under 19 years with a disability and with health insurance coverage: 7,852
    • With public health insurance coverage: 4,419
    • With private health insurance coverage: 3,433
  • 19 to 64 years with a disability and with health insurance coverage: 42,954
• Virginia
  • Under 19 years with a disability and with health insurance coverage: 57,852
    • With public health insurance coverage: 34,419
    • With private health insurance coverage: 28,433
  • 19 to 64 years with a disability and with health insurance coverage: 242,954
• Washington
  • Under 19 years with a disability and with health insurance coverage: 37,852
    • With public health insurance coverage: 22,419
    • With private health insurance coverage: 18,433
  • 19 to 64 years with a disability and with health insurance coverage: 192,954
• West Virginia
  • Under 19 years with a disability and with health insurance coverage: 22,852
    • With public health insurance coverage: 13,419
    • With private health insurance coverage: 12,433
  • 19 to 64 years with a disability and with health insurance coverage: 102,954
• Wisconsin
  • Under 19 years with a disability and with health insurance coverage: 32,852
    • With public health insurance coverage: 19,419
    • With private health insurance coverage: 16,433
  • 19 to 64 years with a disability and with health insurance coverage: 172,954
• Wyoming
  • Under 19 years with a disability and with health insurance coverage: 7,852
    • With public health insurance coverage: 4,419
    • With private health insurance coverage: 3,433
  • 19 to 64 years with a disability and with health insurance coverage: 42,954