Brother and sister help protect autistic brother from head punches

Siblings helping protect autistic brother during self injurious meltdown. Disturbing side of autism you wont see in public broadcasts or charity events about autism. Nor will you hear people who think autism is "wonderful" or a "gift" talk about this level of autism….

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23 Comments

  1. CDFoakley says:

    @MrKeihn Thank you. Jamey is blessed to have a family that truly cares for him and wants the best. This has been an ordeal that has bafled even the most popular autism experts. That said, it is not without hope. The years he’s suffered are going to mitigated by the years he will have joy, peace, comfort when we finally find the right combination of natual and conventional medicines to help him. There are case of severely autistic adults in 30’s who finally calmed down with right med combo

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    • MomOnTheEdge says:

      CDFoakley; I truly admire your strength, courage, persistence, all the qualities you possess in caring for your son and continuing the fight for medical assistance. I have a son with severe profound MR due to immunization-induced encephalitis. He is 26 and looks very much like your son except with lighter hair. Perhaps the resemblance is also due to the very similar autistic behaviors. My son however doesn’t walk much and his self injurious behaviors are much more extreme (it has taken up to 3 people at times to “control” him so he cannot hurt himself or others.) His seizure activity is much less subtle than your son’s. I have taken him to doctors locally, in Houston which is only 5 hours away, and across the country several times, including a 3 month inpatient stay at Kennedy/Kreiger (part of the Johns Hopkins complex in Baltimore) to no avail. I am a single parent to my son…his father walked out and though we live in the same small city, he finally dropped completely out of his son’s life about 14 years ago. His father has no family here and though my entire family lives here, they have never been comfortable around my son esp when he is crying, screaming and out of control. My sister is an RN but is not a part of my son’s life by her choice. I also have a 16 year old daughter that I have raised mostly on my own. My life was a bit more hectic when I was diagnosed with breast cancer, went thru chemo and over a dozen surgeries in a 2 year period due to an infection from my first surgery and have permanent side affects/issues. However, even without family support thru it all, I have been very lucky in finding caregivers who are compassionate and have become our extended family. Like you with your son, I have been on the gastro bandwagon for so long with no answers. We can all see that his stomach bothers him, but no doctor sees it. I finally tapered off on the search for answers from doctors (so many procedures with no answers) and just looked to medications (pharmaceutical to natural, eastern to western med, whatever) to help my son live in a measure of comfort. He deserves at least that. I just wanted to say how much I admire you dedication to keeping up the fight to find an answer for your son. You are a warrior mom. As someone who has traveled your journey in many ways, I wanted to say how much I truly admire you and wish you, your son, your family/support system the very best. If you come across a medical miracle or an amazing physician, if you could keep in touch, I would be deeply appreciative. Thank you and take care of yourself most of all. He needs you healthy, a lesson I learned the hard way.

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  2. CDFoakley says:

    @Abnormaldiversity Yes, your qualities matter and hold a special place in my heart, as it must be very frustrating to see autistics more severe than you, that seem to gather the more shock value. But the reality is, we are all in this together. It doesn’t matter if you are HIGH functioning or LOW functioning, you are all connected by a special bond that warrants help, love, respect and tolerance.

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  3. CDFoakley says:

    @Abnormaldiversity Yes, I understand your frustration. My brother, and possibly another one of my sons has Aspergers. They don’t get half the attention severe autism gets, because, well, severe autism is much more severe than Aspergers, though my son and brother have their issues, they are much more advanced than my son, so even they, being high functioning Aspergers’ understand this, and aren’t mad about it

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  4. MrKeihn says:

    i was almost in tears because i saw the beauty of a brother and sister protecting another brother i am deeply crushed on what they have to go through and comend them for the love they show to carry on

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  5. GibsonR1823 says:

    @vulturedoors Doood whatta biiittchhhh

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  6. Abnormaldiversity says:

    Oh, and you claim we don’t see this side in public broadcasts or charity events. Actually, that’s pretty much *all* we see. Look at the ‘Autism Every Day’ video – it was so full of the negative and none of the positive.

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  7. Irene211084 says:

    @CDFoakley He is so beautiful, really good looking guy. Bless him & u for all being so wonderful, he needs u & if the boot was on the other foot I bet he would fight & do right by u 2 -x-
    My brother started hearing voices 4 years agoe & it was unbelievable the stess, pain & heartbreak it caused us all. He is worth it, we love him sooooooooo much, we hate the illness but we love him & will stand by him forever xxx

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  8. MissDaisyXD says:

    I cannot believe that somebody actually said:

    ‘This will sound cruel, but letting such severely disabled people live is a burden to everyone’

    Things don’t normally make me angry, but that is disgusting.

    it really is.

    if somebody said that about my autistic brother, well..i don’t what i would do.

    x

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  9. bonesmccoy1 says:

    I am learning so much from these videos that i am now able to take care of my cousin for weekends in order to give my aunt and uncle a break…he also has SIB and siezures….but he and i seem to have a type of bond and i have been able to redirect him from some of his SIB now thanks to your videos.

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  10. camogurl975 says:

    @vulturedoors Well actually the way I see it, (my brother’s severely autistic) he doesn’t even realize anything is wrong with him. So it’s not a burden on him. And personally, he’s helped us grow as a family. WE work together to take care of him.

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  11. comtessedebergerac says:

    This so sad…I feel for you all, but I wonder about siblings… what life are they allowed to have… ?

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  12. EdTheBadass says:

    hey! its natural selection! Stop interferring!

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  13. LibraBaby25 says:

    @vulturedoors I lived with an autistic stepbrother for 5 years and not ever did I once resent the burden he beared upon my family. God has a plan for every single person in this world including the mentally challenged! Yes it can be stressful, but you can ask this mother, CDFoakley, you wouldnt change the way your son is for the world, you only want his happiness, Correct?

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  14. Depravedmaniac666 says:

    @DarkQuietWyattON The world would’ve been better off and would have lasted much longer if the Nazi’s lived. No more disorders, no more fights about race, no more different political ideologies, and countries with nuclear weapons. HEIL HITLER, and worship the FUHRER

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  15. DarkQuietWyattON says:

    @vulturedoors I have a more than one disability. You think I should not be allowed to live? Yeah…the nazi’s thought the same thing.

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  16. VampicAddiction says:

    I’ve been watching video’s about this boy for almost two hours. I can’t stop watching them.. It’s very sad, and it makes me wish i could help in some way! Your son is absolutely gorgeous, you you are such a wonderful mother.

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  17. jenbug0479 says:

    How do you feel about the little shocking device? I have heard good and bad responses to it. I know some people think it’s cruel, but wow this behavior is very difficult. I work in Special Ed. and sometimes there just are not any good options.

    I hope the best for you family.

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  18. lovebellamia says:

    @vulturedoors – I am his sister and the only resentment I feel is towards the people who have the capabilities to help my family but instead are too worried about their latte from Starbuck’s.

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  19. luvngrati2d says:

    my son has autisim and in California, I went through a hell too there desperate to get help. It was so difficult to even get an official evaluation to even start the torturous hunt for any kind of services. Other states are better (we in Dallas now). and i think CA must have the highest rate of autism.
    Your family is MORE THAN AMAZING. Inspirational truly. Try binding his body with compression bandages. Thank you for sharing truth.

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  20. jersysalvacion1 says:

    @vulturedoors…hope u really know what ur talking about…just be thankful ur not in our situation!

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  21. urbanangel13 says:

    my son has autism & sometimes punches himself too. though not during his sleep. i accept my son as he is but meltdowns are distressing for both him & myself.

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  22. rqshepherd says:

    your family is the greatest

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